Five years ago a very tiny boy was born. I called him Ivo. The next day I found out that he has a Down Syndrome. It was a hard time for my family but we loved him at the first smile. When he was 6,5 months old he was diagnosed with one of the hardest type of epilepsy known as Infantile Spasms or West Syndrome. Luckily, after a month of steroid therapy the seizures stopped.
As he grew, we noticed some odd behaviors. Around age 2 his behaviors began to be burdensome to normal functioning. Unsuccessfully searching for an answer we finally asked for a study of autism. The answer we get: neurological disorder calls SPD (Sensory Processing Disorder)
Ivo's speech is delayed. He usually says some sentences connecting only two words together.
21st of March... for some people this is the first day of Spring, for people with DS ( like my son Ivo ) and their families this is World Down Syndrome Day. For me, since now it is going to be a very special day. The day to remember, the day when my little boy told me the most beautiful words every mother wants to hear... spontaneously, just like that...
Could I have asked for a more beautiful ending of this special day? I was in tears. I waited for this moment for 5 years...
Just watch this video.
More about Ivo you can find on Ivo's diary (link below) www.facebook.com/IvoSz
As he grew, we noticed some odd behaviors. Around age 2 his behaviors began to be burdensome to normal functioning. Unsuccessfully searching for an answer we finally asked for a study of autism. The answer we get: neurological disorder calls SPD (Sensory Processing Disorder)
Ivo's speech is delayed. He usually says some sentences connecting only two words together.
21st of March... for some people this is the first day of Spring, for people with DS ( like my son Ivo ) and their families this is World Down Syndrome Day. For me, since now it is going to be a very special day. The day to remember, the day when my little boy told me the most beautiful words every mother wants to hear... spontaneously, just like that...
Could I have asked for a more beautiful ending of this special day? I was in tears. I waited for this moment for 5 years...
Just watch this video.
More about Ivo you can find on Ivo's diary (link below) www.facebook.com/IvoSz
More info: Facebook
tears of joy
Born to be ...Ivo...
